Here, you'll find all of HemiHelp's leaflets. If you'd prefer to have a paper copy, you can order as many leaflets as you need using our Publications order form, or download our leaflets in pdf format below and print them out.
When reading these leaflets please do bear in mind that the difficulties faced by children and young people with hemiplegia vary enormously in range and severity, and that some leaflets deal with more serious problems, which affect only a minority of people with hemiplegia.
Please also keep an eye on the Latest news section of our website, where we post details of new guides and booklets produced by other organisations.
- What is hemiplegia?
General information on hemiplegia and HemiHelp.
- You have just been told your child has hemiplegia
Information for parents/carers whose child has just been diagnosed.
- HemiHelp services
Find out what support is on offer for those affected by hemiplegia.
- Family and friends
A short introduction to hemiplegia, and how to help a child with hemiplegia, for family and friends.
- Brothers and sisters
What impact can hemiplegia have on the siblings of the affected child?
- Early years education
Guidelines for early years education workers on how to encourage development and independence in children with hemiplegia
- Guidelines for teachers - Secondary education
A booklet for secondary school teachers. Children with hemiplegia face not only physical challenges at school - many of them have additional problems which affect their school lives. The more teachers understand the effects of hemiplegia, the greater the help they can offer the child. Parents and carers also find these booklets give them more insight into their child’s condition.
- The inclusion of children with cerebral palsy - including hemiplegia - in early years settings
HemiHelp, in conjunction with Scope, has produced this leaflet which is a comprehensive run down of guidance for early years workers. Headings include "Handling a child with cerebral palsy", "Changing clothes", "Communication" and "Playing and learning".
- Early communication for children with complex needs
This is also produced in conjunction with Scope and is about early communication for children with complex needs and covers different strategies for communication between the child and their carer. Aimed at those with communication difficulties, it suggests strategies that include equipment and toys and seating and also lists further resources.
This information sheet has been writting by Rosemary Sassoon, a handwriting specialist, who has produced a number of fonts to help children learn to read and write.
- What you see is not what you get: visual perceptual difficulties.
We explain some of the difficulties vision and perception.
- Epilepsy and hemiplegia
Over one in five children with hemiplegia also have epilepsy.
- Emotions and behaviour
We explain some of the difficulties affecting emotions and behaviours and suggestion some techniquest that could help.
- Coping with behaviour problems
Research has demonstrated that problems associated with hemiplegia can be more disabling than the hemiplegia itself and behaviour problems could certainly fall into this category. But how do you cope day to day? Written by a child psychologist these excellent strategies look at how your response can have a huge impact on the child.
- Botulinum Toxin and Hemiplegia
A guide to the use of Botulinum Toxin injections as part of a movement therapy programme.
- Orthopaedic surgery for hemiplegia
Hemiplegia often causes tightening of muscles which, if unchecked, can lead to serious deformity in the affected limbs. For some children physiotherapy and possibly splinting are effective in reducing this problem, but for others surgical correction needs to be considered. A Consultant Orthopaedic Surgeon discusses the procedures used.
- Ankle and foot splints or othoses (AFOs)
Splinting is one of the most common treatments for the impaired gait often associated with hemiplegia. An experienced orthotist explains the various types of splint and how they work.
- Upper Limb Splinting
More information about splinting, this time looking at splints used on the arm, shoulder, elbow, wrist or hand. This informatino sheet explains how different types of splint are used and what they do.
From cutlery to climbing frames. An extensive list of things to make the child’s everyday life easier, and where to get them.
Hints on helping the child become more independent, and where to find the clothes that will make it easier.
Finding suitable footwear is one of the most common problems faced by parents and carers of children and young people with hemiplegia. This lists companies who will provide odd sized pairs, Velcro fastenings etc.
- Shoe Lacing
Yes, you can do it one-handed (diagrams supplied). Or do you prefer stretchy laces? All you ever wanted to know about this tricky problem.
- Computers and ICT
Compiled with the help of Abilitynet and teaching advisers, this information sheet offers children and adults with hemiplegia some tips on adapting a computer to meet their needs.
Activities and social life
- Getting active
A look at how HemiHelp members get active and a list of organisations that could help your family access a new sport or hobby.
- Staying active
HemiHelp members share ideas about how to stay active and a list of useful contacts give.
Children of all ages love to ride a bike and children and young people with hemiplegia are no different, though they may take longer to learn and some may need a three-wheeler or other specialised bike. This leaflet will help them get started.
A weak arm may seem rather a hindrance to playing a musical instrument, but many instruments can be played with one hand, or hands of differing strengths, and the pleasure of music making may encourage the child to make more use of their affected hand.
- Friendships and relationships
Outlines the different aspects of making friends and having relationships, considering the difficulties that some people with hemiplegia may have with self-esteem and social interactions.
Many people with hemiplegia are able to drive a car, providing it has automatic gears, power steering and steering and indicator adaptations. Where to go for advice, assessment and instruction.
Financial help, employment and legislation
- It's for your benefit
A guide to some benefits, tax credits and other financial help
- Guidelines for completing DLA forms
Straightforward, step-by-step instructions to guide you through the complicated procedure of filling out the Disabled Living Allowance Application Form.
- Grants and funding for families and individuals
A list of organisations offering families with disabled children or adults with disabilities support with everyday living, purchasing musical instruments and much more.
- Benefits and financial help for adults
Some hints on claiming DLA, income-related benefits, guidance on housing and social care and details of financial support for those remaining in education post-16.
- Getting into work
A look at what issues arise when looking for work and some suggestions on how to apply for jobs and prepare for interviews.