Our quarterly magazine is full of the latest information and news. It gives families and professionals the opportunity to learn more about treatments, activities and tips about everyday life. Have you ever thought about writing an article for our magazine? We need your letters and articles to ensure that our magazine continues to provide our members with information, support and encouragement, so please write or email firstname.lastname@example.org. NB to receive the Magazine you must be a member of HemiHelp.
Website and Forum
Visit www.hemihelp.org.uk and check out our website for all our latest news and events. The site includes all our information sheets and a forum where parents, professionals and people with hemiplegia share their experiences with others.
The Hemiplegia Handbook
A practical guide for parents and professionals that provides an overview of living with hemiplegia with straightforward explanations of potential causes and the different management options, with clear descriptions of approaches to therapy. You can order a copy from our online shop or by contacting the office on 0845 120 3713 / email@example.com NB HemiHelp members will get a discount.
Primary Schools Pack
This pack contains information and guidance for teachers on a range of issues to help them support children with hemiplegia throughout primary school. It can be adapted and added to for the child’s individual needs. Parents may also find this pack useful. You can order your pack from our online shop or by contacting the office on 0845 120 3713 / firstname.lastname@example.org
Public Affairs Updates
A quarterly e-mail summary of news and policy changes relating to health, education, welfare and disability to get you up-to-date on important issues that may affect you and to know how to have your say in the making of policy.
Fully trained volunteers with personal experience of hemiplegia staff our Helpline Monday – Friday, 10am -1pm, during term time. Whether you would like to talk through some of your concerns with someone or need some information on any aspect of hemiplegia you can call our Helpline on 0845 123 2372 or email at email@example.com
Family Back Up Service
We visit families at their homes if they need extra one-to-one practical and emotional support. Our trained visitors, who have personal experience of hemiplegia, also offer training for schools to help educational staff better understand hemiplegia and how to support pupils with the condition. NB you must be a member of HemiHelp to use this service. This service is available throughout England, Wales and Scotland.
Transition Service (for young adults aged 16-25)
We have a transition support service for young adults moving from education to employment, higher education and/or independent living that provides one-to-one support from a Transition Adviser, work placements and employment workshops. If you need some extra help with any of these aspects our mentoring scheme will match you up with an adult with hemiplegia for one-to-one and face-to-face personalised support over a longer period of time. Contact our Transition Adviser Karen Mount at firstname.lastname@example.org or 07754 103340 for more information.
Make contact with others
We hold hugely popular regional “Try It” activity days, where children with hemiplegia and their siblings can try out activities in a comfortable environment with their families around them. It is a great opportunity for your child and you to meet other families in a similar situation. And most importantly it is a chance to have some fun!
Conferences for parents
We run a regional conference programme for parents that provides the latest information on medical, educational and social aspects of living with hemiplegia. Parents/carers have the opportunity to meet other families in their region and share their experiences.
Conferences for professionals
Our regional conference programme for professionals aims to increase awareness about hemiplegia and share knowledge and best practice about the condition and associated therapies. A great opportunity to hear the latest developments in the management of hemiplegia and network with other professionals.
We hold Creative Workshops across the country, where children and their families can get together in an informal, friendly atmosphere. Workshops may incorporate music and include trying out a range of different instruments. Drama and creative movement workshops are fun and engaging sessions for children of all ages.
Regional Reach Groups
Would you like to be able to meet and share your experiences with other families in your area? We have a number of groups getting together on a regular basis across the U.K. It is a great opportunity for you and your child(ren) to meet others and share experiences. NB to become part of your Regional Reach Group you must be a member of HemiHelp.
Pen Pals (for children 5+ yrs)
Would your child like a pen pal to share their experiences with another child or young person? Our pen pal scheme can put your child in touch with others of a similar age so they can share experiences and hopefully form lasting friendships. NB to take advantage of the Pen Pal Scheme you must be a member of HemiHelp.
Online social media
Follow us on Twitter @HemiHelp for daily updates about events, new opportunities and all the latest information relevant to you. Join the HemiHelp Facebook Group to share tips, info and experiences with other parents or young adults with hemiplegia (type ‘HemiHelp’ into the search box and be part of a community of over 1,700 people!). We also have a charity Facebook page you can “like” to get lots of useful information and links to stay up-to-date. Subscribe to the HemiHelp YouTube channel to see videos featuring children with hemiplegia and their parents www.youtube.com/hemihelp
We have a stock of one-handed recorders that our members can borrow for a small fee. Find out more information here
Volunteering and fundraising
Do you have any time to spare? Would you like to help improve the information and support provided to families affected by hemiplegia? Why not request a volunteer form or a fundraising pack? Please contact the HemiHelp office for further information on how you can help us: 0845 120 3713/ 0207 840 0159 or email the office at email@example.com.
Join us today!
If you aren’t a HemiHelp member yet, join us to access the full range of services and to get discounts on publications and events. You can find more information here