Other organisations

Action for Sick Children
38 Jacksons Edge Road, Disley, Stockport SK12 2JL
Tel: 0800 0744519
Website: www.actionforsickchildren.org.uk
Nationwide network of parents and professionals, dedicated to achieving the highest quality care for children both in hospital and in the community. Promotes awareness, gives advice and support to families and campaigns for quality health services for children.

AFASIC (Association for all Speech Impaired Children)
2nd Floor, 50-52 Great Sutton Street, London, EC1V 0DJ
Tel: 020 7490 9410
Fax: 020 7251 2834
Helpline: 0845 3555577
Email: info@afasic.org.uk
Website: www.afasic.org.uk

ASBAH (Association for Spina Bifida and Hydrocephalus)
Asbah House, 42 Park Road, Peterborough, Cambs, PE1 2UQ
Tel: 01733 555988
Helpline: 0845 450 7755
Fax: 01733 555985
Email: info@asbah.org
Website: www.asbah.org
Active local groups. ASBAH produces some excellent information sheets.

Asthma UK
Summit House, 70 Wilson Street, London EC2A 2DB
Tel: 020 7786 4900
Helpline : 0845 701 0203
Fax: 020 7256 6075
Email: info@asthma.org.uk
Website: www.asthma.org.uk
Good pack of leaflets on many key issues for the child with asthma.

Newlife Foundation for Disabled Children
Newlife Centre, Hemlock Business Park, Hemlock Way, Cannock, Staffs WS11 7GF
Tel: 01543 468888
Fax: 01543 468999
Email: info@newlifecharity.co.uk
Website: www.newlifecharity.co.uk
Direct help and care for sick and disabled babies, children and families.

BLISS
2nd & 3rd Floors, 9 Holyrood Street, London SE1 2EL
Tel: 020 7378 1122
Helpline: 0500 618140
Fax: 020 7403 0673
Email: information@bliss.org.uk
Website: www.bliss.org.uk
Helpline and support for the parents of special care babies.

Brain and Spine Foundation
7 Winchester House, Cranmer Road, Kennington Park, London W9 6EJ
Helpline: 0808 8081000
Fax: 020 7793 5939
Email: helpline@brainandspine.org.uk
Website: www.brainandspine.org.uk
Produces great leaflets and information.

British Dyslexia Association
98 London Road, Reading, Berkshire, RG1 5AU
Helpline: 0118 966 8271
Admin: 0118 966 2677
Fax: 0118 935 1927
Email: admin@bdadyslexia.org.uk
Website: www.bdadyslexia.org.uk
Has 130 Local Associations and Support Groups. Produces 70 information sheets.

British Red Cross
44 Moorfields, London EC2Y 9AL
Tel: 0870 170 7000
Fax: 020 7562 2000
Website: www.redcross.org.uk
Numerous local branches. Probably a good idea to consult your local phone book for your Area Office. Can provide escorts, transport or volunteer drivers for hospital visits, holidays or visits to friends and family. Expenses and mileage costs.

Cancerbackup
3 Bath Place, Rivington Street, London, EC2A 3DR
Helpline: 0808 800 1234
Website: www.cancerbackup.org.uk
Provide information and support by telephone and letter to people with cancer, their families and friends. Booklets, factsheets and newsletter also available.

Carers UK
20-25 Glasshouse Yard, London,
EC1A 4JT
Helpline: 0808 808 7777
Admin: 020 7490 8818
Fax: 020 7490 8824
Email: info@carersuk.org
Website: www.carersuk.org
Information and support for carers. Many local branches. Free leaflets and information sheets.

Centre for Accessible Environments
70 South Lambeth Road, London SW8 1RL
Tel / textphone: 020 7840 0125
Fax: 020 7840 5811
Email: info@cae.org.uk
Website: www.cae.org.uk
Useful if planning a house alteration.

Cerebra - The Foundation for the Brain Injured Infant
Principality Buildings, 13 Guildhall Square, Carmarthen, Carmarthenshire SA31 1PR
Tel: 01267 244203
Fax: 01267 244213
Website: www.cerebra.org.uk

Childline
Tel: 0800 1111
Textphone: 0800 400 222
Website: www.childline.org.uk
Advice Line for children ONLY.

CBIT (Children’s Brain Injury Trust)
Unit 1, The Great Barn, Baynards Green Farm, Bicester, Oxfordshire OX27 7SG
Tel: 01869 341075
Helpline: 0845 6014939
Email: helpline@cbituk.org
Website: www.cbituk.org
Provides support and information to parents and professionals.

Child Growth Foundation
2 Mayfield Avenue, Chiswick, London W4 1PW
Tel: 020 8995 0257
Fax: 020 8995 9075
Email: cgflondon@aol.com
Website: www.childgrowthfoundation.org

Compassionate Friends
53 North Street, Bedminster, Bristol,
BS3 1EN
Tel: 0845 120 3785
Helpline: 0845 123 2304
Fax: 0845 120 3786
Email: info@tcf.org.uk
Helpline for siblings: info@tcfsiblingsupport.org.uk
Website: www.tcf.org.uk
Help and friendship for families who have lost a child. Ring for local contacts. They have a good book list and supply leaflets.

Different Strokes
9 Canon Harnett Court, Wolverton Mill, Milton Keynes, MK12 5NF
Tel: 0845 130 7172
Fax: 01908 313501
Email: info@differentstrokes.co.uk
Website: www.differentstrokes.co.uk
Support for young stroke survivors, including young adults.

Dyslexia Action
Park House, Wick Road, Egham, Surrey, TW20 0HH
Tel: 01784 222300
Fax: 01784 222333
Email: info@dyslexiaaction.org.uk
Website: www.dyslexiaaction.org.uk
Training & assessment centres around the country.

Dyspraxia Foundation
8 West Alley, Hitchin, Herts, SG5 1EG
Helpline: 01462 454 986
Fax: 01462 455 052
Email: dyspraxia@dyspraxiafoundation.org.uk
Website: www.dyspraxiafoundation.org.uk
Support & advice. Local co-ordinators.

Encephalitis Information Resource
7b Saville Street, Malton, North Yorks, YO17 7LL
Helpline: 01653 699599
Admin Tel: 01653 692583
Email: support@encephalitis.info
Website: www.encephalitis.info

Epilepsy Action
New Anstey House, Gateway Drive, Yeadon, Leeds LS19 7XY
Tel: 0113 210 8800
Helpline: 0808 800 5050
(Mon-Thu. 9am-4.30pm, Fri 9am-4pm)
Email: epilepsy@epilepsy.org.uk
Helpline email: helpline@epilepsy.org.uk
Website: www.epilepsy.org.uk
Produces a number of very good books and leaflets. Advice for parents, patients and the general public. Assistance with many problems, including schooling. There are many local support groups throughout UK.

Epilepsy Scotland
48 Govan Road, Glasgow. G51 1JL
Helpline: 0808 800 2200
Tel: 0141 427 4911
Fax: 0141 419 1709
Email: enquiries@epilepsyscotland.org.uk
Website: www.epilepsyscotland.org.uk

ERIC (Enuresis Resource and Information Centre)
34 Old School House, Britannia Road, Kingswood, Bristol, BS15 8DB
Helpline: 0845 370 8008
Fax: 0117 9600401
Email: info@eric.org.uk
Website: www.eric.org.uk
Provides information and advice on potty training, as well as ongoing wetting and soiling.

Gingerbread
307 Borough High Street, London SE1 1JH
Helpline: 0800 018 4318
Admin: 020 7403 9500
Fax: 020 7403 9533
Email: office@gingerbread.org.uk
Website: www.gingerbread.org.uk
Approximately 160 self-help groups providing support, friendship, holidays and advice for single parents. Many publications.

Headway- The Brain Injury Association
4 King Edward Court, King Edward Street, Nottingham NG1 1EW
Tel: 0115 924 0800
Fax: 0115 958 4446
Helpline: 0808 800 2244
Email: enquiries@headway.org.uk
Website: www.headway.org.uk

Hyperactive Childrens' Support Group
71 Whyke Lane, Chichester, PO19 2LD
Tel: 01243 539966
Email: hyperactive@hacsg.org.uk
Website: www.hacsg.org.uk

Kidscape
2 Grosvenor Gardens, London,
SW1W 0DH
Tel: 020 7730 3300
Helpline: 08451 205 204
Fax: 020 7730 7081
Email: contact@kidscape.org.uk
Website: www.kidscape.org.uk
Campaigns for children's personal safety. It deals with issues such as bullying, abuse, getting lost. Produce free leaflets (send a large sae).

Look (National Federation of Families with Visually Impaired Children)
Queen Alexandra College, 49 Court Oak Road, Harborne, Birmingham B17 9TG
Tel: 0121 428 5038
Email: admin@look-uk.org
Website: www.look-uk.org
Organise local groups of families for sharing information.

MENCAP
123 Golden Lane, London, EC1Y 0RT
Tel: 020 7454 0454
Fax: 020 7608 3254
Helpline: 0808 808 1111
Email: information@mencap.org.uk
Website: www.mencap.org.uk
Provides advice, support and services to people with learning disabilities and their families.

Migraine Action Association
Unit 6, Oakley Hey Lodge, Great Folds Road, Great Oakley, Northants NN18 9AS.
Tel: 01536 461333
Enquiries about Migraine: 0870 050 5898
Fax: 01536 461444
Website: www.migraine.org.uk
Supports research and provides information and support. Literature is available to members.

Multiple Births Foundation
Hammersmith House, Level 4, Queen Charlotte’s & Chelsea Hospital, Du Cane Road, London W12 0HS
Tel: 020 8383 3519
Fax: 020 8383 3041
Email: info@multiplebirths.org.uk
Website: www.multiplebirths.org.uk
Will advise families who have one or both twins (or more) with special needs.

National Autistic Society
393 City Road, London, EC1V 1NG
Tel: 020 7833 2299
Fax: 020 7833 9666
Helpline: 0870 070 4004
Email: nas@nas.org.uk
Website: www.nas.org.uk
Aims to provide education, treatment, welfare and care to people with autism and related conditions.

National Childrens' Bureau
8 Wakley Street, Islington, London EC1V 7QE
Tel: 020 7843 6000
Fax: 020 7278 9512
Website: www.ncb.org.uk
Spans the whole spectrum of statutory and voluntary agencies. Can provide computerised reading lists on child related subjects for a small charge.

National Deaf Childrens Society
15 Dufferin Street, London EC1Y 8UR
Tel: 020 7490 8656
Hrlpline: 0808 800 8880
Fax: 020 7251 5020
Email: helpline@ndcs.org.uk
Website: www.ndcs.org.uk
Provides educational and technical advice to families of deaf children and young people. There are 120 local groups which organise fund-raising and social activities.

National Eczema Society
Hill House, Highgate Hill, London N19 5NA.
Tel: 020 7281 3553
Fax: 020 7281 6395
Helpline: 0870 2413604
Website: www.eczema.org
Practical advice and information. Network of local contacts.

National Family Mediation
7 The Close, Exeter EX1 1EZ
Tel: 01392 271610
Fax: 01392 271945
Email: general@nfm.org.uk
Website: www.nfm.u-net.com
Offers help to couples married or unmarried who are in the process of separation or divorce.

Outsiders
BCM Box Outsiders, London, WC1N 3XX
Tel: 020 7354 8291
Email: info@outsiders.org.uk
Website: www.outsiders.org.uk
A club for anyone who feels isolated by their disability, where they gain confidence, can make friends and gain partners.

Parentline Plus
Helpline: 0808 800 222
Email: parentsupport@parentlineplus.org.uk
Website: www.parentlineplus.org.uk
Parentline Plus is a UK registered charity which offers support to anyone parenting a child.

RNIB (Royal National Institute for the Blind)
105 Judd Street, London WC1H 9NE
Helpline: 0845 766 9999
Fax: 020 7388 2034
Website: www.rnib.org.uk
Pre-16 Education Advisory Service available.

RNID (Royal National Institute for Deaf People)
19-23 Featherstone Street, London EC1Y 8SL
Tel: 020 7296 8000
Minicom: 020 7296 8001
Fax: 020 7296 8199
Website: www.rnid.org.uk

RYA Sailability
RYA House
Ensign way
Hamble
Southampton
SO31 4YA
Tel: 0845 345 04 03
Fax: (023) 8060 4286
Email: info@ryasailability.org
Website: www.rya.org.uk/sailability
Bringing boating to people with disabilities.

Samaritans
The Upper Mill, Kingston Road, Ewell, Surrey KT17 2AF
Tel: 08457 909090
Email: jo@samaritans.org
Website: www.samaritans.org
Nationwide non-religious, non-political 24hr confidential support.

SENSE (National Deaf Blind & Rubella Association)
11-13 Clifton Terrace, Finsbury Park, London N4 3SR
Tel: 020 7272 7774
Textphone: 020 7272 9648
Fax: 020 7272 6012
Email: info@sense.org.uk
Website: www.sense.org.uk

SNAP! Specialist nanny and care workers agency
91-93 Great Eastern Street, Shoreditch,
London, EC2A 3HZ.
Tel: 020 7729 2200
Fax: 020 7729 0022
Email: info@snapchildcare.co.uk
Website: www.snapchildcare.co.uk
Agency specialising in the provision of staff for any work with children with special needs e.g. nannies and learning support assistants.

Steps (National Association for Children with Abnormalities of the Lower Limbs)
Warrington Lane, Lymm, Cheshire WA13 0SA
Tel: 0871 717 0045
Helpline: 0871 717 0044
Website: www.steps-charity.org.uk
Email: info@steps-charity.org.uk
Support and information.

TAMBA — The Twins and Multiple Births Association
2 The Willows, Gardner Road, Guildford, Surrey, GU1 4PG
Tel: 0870 770 3305
Helpline: 0800 138 0509
Website: www.tamba.org.uk

YoungMinds
48-50 St John Street, London, EC1M 4DG
Tel: 020 7336 8445
Fax: 020 7336 8446
Information Service: 0800 018 2138
Email: enquiries@youngminds.org.uk
Website: www.youngminds.org.uk
A telephone service providing information and advice for anyone with concerns about the mental health of a child or young person.