Other organisations

Action for Sick Children - Tel: 01663 763 004 Helpline: 0800 0744 519 Email: enquiries@actionforsickchildren.org Website: actionforsickchildren.org Nationwide network of parents and professionals, dedicated to achieving the highest quality care for children both in hospital and in the community. Promotes awareness, gives advice and support to families and campaigns for quality health services for children.

AFASIC (Association for all Speech Impaired Children) - Tel: 020 7490 9410 Helpline: 08453 55 55 77 Email: info@afasic.org.uk Website: www.afasic.org.uk

ASBAH (Association for Spina Bifida and Hydrocephalus) - Helpline: 0845 450 7755 Email: info@asbah.org Website: www.asbah.org Active local groups. ASBAH produces some excellent information sheets.

Asthma UK - Tel: 020 7786 4900 Helpline: 0800 121 6255 Email: info@asthma.org.uk Website: www.asthma.org.uk Good pack of leaflets on many key issues for the child with asthma.

Newlife - Tel: 01543 468 888 Email: info@newlifecharity.co.uk Website: www.newlifecharity.co.uk Direct help and care for sick and disabled babies, children and families.

BLISS - Tel: 020 7378 1122 Helpline: 0500 618 140 Email: information@bliss.org.uk Website: www.bliss.org.uk Helpline and support for the parents of special care babies.

Brain and Spine Foundation - Tel: 0207 7935900 Office Email: info@brainandspine.org.uk Helpline: 0808 808 1000, Helpline Email: helpline@brainandspine.org.uk Website: www.brainandspine.org.uk Produces great leaflets and information.

British Dyslexia Association - Helpline: 0845 251 9002 Email: admin@bdadyslexia.org.uk Website: www.bdadyslexia.org.uk Has 130 Local Associations and Support Groups. Produces 70 information sheets.

British Red Cross - Tel: 0844 412 2804 Email: information@redcross.org.uk Website: www.redcross.org.uk Numerous local branches. Probably a good idea to consult your local phone book for your Area Office. Can provide escorts, transport or volunteer drivers for hospital visits, holidays or visits to friends and family. Expenses and mileage costs.

Macmillan Cancer Support - Tel: 020 7840 7840 Helpline: 0808 808 00 00, Email: postmasters@macmillan.org.uk Website: www.macmillan.org.uk Provide information and support by telephone and letter to people with cancer, their families and friends. Booklets, factsheets and newsletter also available.

Carers UK - Tel: 020 73784999 Helpline: 0808 808 7777 Email: info@carersuk.org Website: www.carersuk.org/ Information and support for carers. Many local branches. Free leaflets and information sheets.

Carers Scotland - Website: www.carerscotland.org/

Carers Wales - Website: www.carerswales.org/

Carers Northern Ireland - Website: www.carersni.org/

Centre for Accessible Environments - Tel: 020 7840 0125 Email: info@cae.org.uk Website: www.cae.org.uk Useful if planning a house alteration.

Childline - Tel: 0800 1111 Textphone: 0800 400 222 Website: www.childline.org.uk Advice Line for children ONLY.

CBIT (Children’s Brain Injury Trust) - Tel: 01869 341 075 Helpline: 0845 601 4939 Email: helpline@cbituk.org Website: www.cbituk.org Provides support and information to parents and professionals.

Child Growth Foundation - Tel: 020 8995 0257 Email: info@childgrowthfoundation.org Website: www.childgrowthfoundation.org

The Compassionate Friends - Tel: 0845 120 3785 Helpline: 0845 123 2304 Email: info@tcf.org.uk Website: www.tcf.org.uk Help and friendship for families who have lost a child. Ring for local contacts. They have a good book list and supply leaflets.

Different Strokes - Tel: 0845 130 7172 or 01908 317 618 Email: info@differentstrokes.co.uk Website: www.differentstrokes.co.uk Support for young stroke survivors, including young adults.

Dyslexia Action - Tel: 01784 222 300 Email: info@dyslexiaaction.org.uk Website: www.dyslexiaaction.org.uk Training & assessment centres around the country.

The Dyspraxia Foundation - Helpline: 01462 454 986 (10-1 Mon-Fri) Fax: 01462 455 052 Email: dyspraxia@dyspraxiafoundation.org.uk Website: www.dyspraxiafoundation.org.uk Support & advice. Local co-ordinators.

The Encephalitis Society - Helpline: 01653 699 599 Tel: 01653 692 583 Website: www.encephalitis.info Provide support and information for people affected by encephalitis.

Epilepsy Action - Tel: 0113 210 8800 Helpline: 0808 800 5050 (Mon-Thu. 9am-4.30pm, Fri 9am-4pm) Email: epilepsy@epilepsy.org.uk Helpline email: helpline@epilepsy.org.uk Website: www.epilepsy.org.uk Produces a number of very good books and leaflets. Advice for parents, patients and the general public. Assistance with many problems, including schooling. There are many local support groups throughout UK.

Epilepsy Scotland - Tel: 0141 427 4911 Helpline: 0808 800 2200 Textphone: 07786209501 Email: enquiries@epilepsyscotland.org.uk Website: www.epilepsyscotland.org.uk

ERIC (Enuresis Resource and Information Centre) - Tel: 0117 960 3060 Helpline: 0845 370 8008 (10-4 Mon-Fri) Email: info@eric.org.uk Website: www.eric.org.uk Provides information and advice on potty training, as well as ongoing wetting and soiling.

Gingerbread - Helpline: 0808 802 0925 Tel: 020 7428 5400 Email: info@gingerbread.org.uk Website: www.gingerbread.org.uk Approximately 160 self-help groups providing support, friendship, holidays and advice for single parents. Many publications. Has a separate section on its website with information for parents bringing up a child with additional needs: www.gingerbread.org.uk/portal/page/portal/Website/For%20lone%20parents/s... The section also has a dedicated Telephone helpline: 0800 018 5026

Headway - The Brain Injury Association - Tel: 0115 924 0800 Helpline: 0808 800 2244 Email: enquiries@headway.org.uk Website: www.headway.org.uk/home.aspx

Hyperactive Childrens’ Support Group - Tel: 01243 539 966 Email: hacsg@hacsg.org.uk Website: www.hacsg.org.uk

Kidscape - Tel: 020 7730 3300 Helpline: 08451 205 204 Email: webinfo@kidscape.org.uk Website: www.kidscape.org.uk Campaigns for children’s personal safety. It deals with issues such as bullying, abuse, getting lost. Produce free leaflets (send a large sae).

Look (National Federation of Families with Visually Impaired Children) - Tel: 0121 428 5038 Email: office@look-uk.org Website: www.look-uk.org Organise local groups of families for sharing information.

MENCAP - Tel: 020 7454 0454 Helpline: 0808 808 1111 Email: information@mencap.org.uk Website: www.mencap.org.uk

Migraine Action - Tel: 0116 275 8317 Helpline: 0116 275 8317 Email: info@migraine.org.uk Children’s Website: http://www.migraine.org.uk/index.php?sectionid=825 Website: www.migraine.org.uk Supports research and provides information and support. Literature is available to members.

Multiple Births Foundation - Tel: 020 8383 3519 Email: mbf@imperial.nhs.uk Website: www.multiplebirths.org.uk Will advise families who have one or both twins (or more) with special needs.

National Autistic Society - Tel: 020 7833 2299 Helpline: 0845 070 4004 Email: nas@nas.org.uk Website: www.autism.org.uk Aims to provide education, treatment, welfare and care to people with autism and related conditions.

National Children’s Bureau - Tel: 020 7843 6000 Email: library@ncb.org.uk Website: www.ncb.org.uk Spans the whole spectrum of statutory and voluntary agencies. Can provide computerised reading lists on child related subjects for a small charge.

National Deaf Children’s Society - Tel: 020 7490 8656 Email: ndcs@ndcs.org.uk Helpline: 0808 800 8880 Email: helpline@ndcs.org.uk Website: www.ndcs.org.uk Provides educational and technical advice to families of deaf children and young people. There are 120 local groups which organise fund-raising and social activities.

National Eczema Society - Tel: 020 7281 3553 Helpline: 0800 089 1122 Email: helpline@eczema.org or info@eczema.org Website: www.eczema.org Practical advice and information. Network of local contacts.

National Family Mediation - Tel: 01392 271610 Email: general@nfm.org.uk Website: www.nfm.org.uk Offers help to couples married or unmarried who are in the process of separation or divorce.

The Nerve Centre - Tel: 01484 469853 Email: info@thenervecentrekirklees.org.uk Website: www.thenervecentrekirklees.org.uk Supporting young people in Yorkshire with neurological conditions - offer subsidised therapy and activity sessions.

Outsiders - Tel: 020 7354 8291 Email: info@outsiders.org.uk Website: www.outsiders.org.uk A club for anyone who feels isolated by their disability, where they gain confidence, can make friends and perhaps meet partners.

Parentline Plus - Tel: 0207 284 5500 Helpline: 0808 800 2222 Email: parentsupport@parentlineplus.org.uk Website: www.parentlineplus.org.uk Parentline Plus is a UK registered charity which offers support to anyone parenting a child.

RNIB (Royal National Institute for the Blind) - Tel: 020 738 81 266 Helpline: 0303 123 9999 Email: helpline@rnib.org.uk Website: www.rnib.org.uk/Pages/Home.aspx Pre-16 Education Advisory Service available.

RNID (Royal National Institute for Deaf People) - Tel: 020 7296 8000 Textphone: 020 7296 8001 Information line: 0808 808 0123 Helpline Textphone: 0808 808 9000 Email: informationline@rnid.org.uk Website: www.rnid.org.uk

Samaritans - Tel: 08457 909090 Email: jo@samaritans.org Website: www.samaritans.org.uk Nationwide non-religious, non-political 24hr confidential support.

SENSE - Tel: 0845 127 0060 Textphone: 0845 127 0062 Email: info@sense.org.uk Website: www.sense.org.uk Provides support for children and families who are deafblind.

SNAP! - Tel: 020 7729 2200 Email: info@snapchildcare.co.uk Website: www.snapchildcare.co.uk Agency specialising in the provision of staff for any work with children with special needs e.g. nannies and learning support assistants.

Steps Charity Worldwide - Helpline: 01925 750 271 Email: info@steps-charity.org.uk Website: www.steps-charity.org.uk Support and information for people with hip, leg or foot conditions.

TAMBA — The Twins and Multiple Births Association - Tel: 01483 304 442 Helpline: 0800 138 05 09 Email: enquiries@tamba.org.uk Website: www.tamba.org.uk

YoungMinds - Tel: 020 7336 8445 Helpline: 0808 802 5544 Email: ymenquiries@youngminds.org.uk Website: www.youngminds.org.uk A telephone service providing information and advice for anyone with concerns about the mental health of a child or young person.